To the new Minister for Health, I encourage you to review the costs of Deep Brain Stimulation in order to increase the accessibility of this surgical procedure for sufferers of severe Parkinson’s Disease.
To my friends and family, to other Australian’s, I encourage you to add your voices to the petition on change.org. I can’t guarantee that it will reach the right people, but hopefully someone will see it and somewhere it will be preserved that there are people out there who care enough to make a difference.
Yesterday I was talking to the CEO of Parkinson’s SA about a cycling fundraiser for Parkinson’s research. She’s keen to give something a go.
How many people out there would be interested in supporting it by riding, sponsoring, volunteering.
Parkinson’s needs more visibility in the community. Sure, it’s not cancer and it doesn’t kill people but its long term, degenerative physical disability and the gap payments for deep brain stimulation can be $14,000 or more.
How many of you know someone with Parkinson’s? That’s right, you probably don’t, because not even 0.3 % of Australia’s population have Parkinson’s.
Because of the high expense of the treatment people have to sell their houses and cars to afford the cost of treatment. These are people who have been paying private health insurance their entire lives. What’s with that?
Something has to change.
I didn’t ride a bike in Singapore and to be honest I didn’t want to. Spending three days in Singapore made meÂ gratefulÂ to live in a great cycling city like Adelaide. While I do sometimes complain about the infrastructure that we do have, at least we have it, and we have a political structure that gives us a voice.
Of the people that I did see riding bikes, I only saw one person wearing a helmet and they were riding a reasonable looking road bike. Who was it that said that mandatory helmet laws stop people from cycling?
I saw one bike shop, and I saw a heck of a lot of other types of shops and shopping centres in Singapore.
Singapore’s population at the 2012 census was Â 5,312,400, that’s 7,315 people perÂ km2Â (wikipedia). If Singapore invested time and money into planning it’s transport infrastructure then imagine how many cars would be off the roads?!
A cleaner greener Singapore would be amazing!