Tag Archive for advocacy

A petition on change.org

Brain Art

To the new Minister for Health, I encourage you to review the costs of Deep Brain Stimulation in order to increase the accessibility of this surgical procedure for sufferers of severe Parkinson’s Disease.

To my friends and family, to other Australian’s, I encourage you to add your voices to the petition on change.org. I can’t guarantee that it will reach the right people, but hopefully someone will see it and somewhere it will be preserved that there are people out there who care enough to make a difference.

Parkinson’s is bloody expensive

Yesterday I was talking to the CEO of Parkinson’s SA about a cycling fundraiser for Parkinson’s research. She’s keen to give something a go.

How many people out there would be interested in supporting it by riding, sponsoring, volunteering.

Parkinson’s needs more visibility in the community. Sure, it’s not cancer and it doesn’t kill people but its long term, degenerative physical disability and the gap payments for deep brain stimulation can be $14,000 or more.

How many of you know someone with Parkinson’s? That’s right, you probably don’t, because not even 0.3 % of Australia’s population have Parkinson’s.

Because of the high expense of the treatment people have to sell their houses and cars to afford the cost of treatment. These are people who have been paying private health insurance their entire lives. What’s with that?

Something has to change.